Showing posts with label special needs. Show all posts
Showing posts with label special needs. Show all posts

Friday, March 12, 2010

Where I've Been & a Superfluous Pic

Hello dear readers---
As the week went by, I thought often of writing a post or two. There are updates to be shared, stories to tell, questions to pose but alas, I was busy writing other less cheerful stuff. This week and part of last week, I have been busy writing emails to Josiah's teacher, principal and others up the chain of command. There have been some issues that have prompted my tackling things I would rather not have to deal with. But as moms, we have young to protect, and in my case, having a non-verbal, vulnerable, special son I have to be his advocate, cause no one else will, AND that is the role God has given me.

Thankfully, I have felt the Lord guiding me and standing with me every step of this journey. And I am hopeful that by next week, the whole situation will be resolved in a way that allows Josiah to thrive, learn and grow in ways he is not able to at present.

One positive thing that has transpired through this whole ordeal is that I have had alot of practice with my writing and I have been doing many revisions and editing (not my fav part of writing!) My sister who is a wonderful general ed teacher told me she's proud of me, and Michael commented that he has seen me grow and become a stronger woman through this hard situation. Encouragement like that I just soak up.

If you are a follower of the Lord Jesus Christ, and he is your Lord and Savior, I would appreciate your prayers for our Tues morning meeting. I believe that the Lord hears our prayers and works on our behalf here on earth and in the heavenlies.

And in honor of the little guy I'm advocating and fight for, here is your pic for the day.



Friday, January 22, 2010

My Heart was Broken Yesterday

Last Sunday we visited a church that some friends have started going to. Its a lovely church. The people were friendly, the sermon was inspirational and encouraging to our souls. The music was familiar and we were able to enter into worship with our hearts and souls. But having a child with special needs is always a challenge when going to a new church. Do they have teachers who will accept our boy? Do they have helpers? Do they do enough fun stuff that he won't be bored and act out?

Our friend offered to sit with him until he got comfortable and I took her up on her kind gesture. When she joined us half way thru service, it sounded like he was doing well.

When I picked him up, the teacher asked me some questions about his disability and told me they had a couple issues, but said she would be looking for a helper to sit with him.

So it was with great suprise that I got a call from the teacher yesterday. She was practically in tears as she told me that her church could not accomadate our son and his special needs.

After I got off the phone, I felt my heart shatter as the rejection of our son and of our family dropped full force on my spirit. My soul wanted to cry, but the tears would not come. Tho I had heard much worse horror stories from other families, this was the first time we had experienced such rejection from the body of Christ.

But I hold in my heart that the Lord God Almighty has not rejected my son, nor our family. And he has a church home for us both here in Boise and when we move after graduation.

Til next time ....


Thursday, March 06, 2008

what's your kiddos morning routine?

first born son has had the sniffles for the last couple days. he seemed esp miserable last nite, so i decided to give him some meds and let him sleep in as long as necessary this morning. we usually get him up around 7:15 and he slept today til 7:45. i let him lounge in our bed watching tv for a half hour and then got him up, bathed, dressed and b'fast. i finally took him to school at 9:30. he was looking better by then and seemed less sleepy and cranky then yesterday morning. not being a morning person myself i can understand his need to wake up slowly. he has to have meds to help him sleep becuz of his diagnoses, so he usually gets to sleep around 9:30 or 10. sometimes later, but never earlier than 9:15 and that is rare.

i've always felt that school started too early, with his bus coming to pick him up at 7:35. the school gives them free b'fast and school doesn't really start til 8:45. after seeing what a difference it made for him this morning i'm wondering if it is feasible, doable, or even advisable to let him sleep in later like this morning, feed him b'fast at home and take him to school between 9 and 9;30 for the rest of the school year.

i'd love to hear your ideas on this subject. whether you have typical kids or special needs ones, homeschool or do public school. bring on the comments!